We as a family have walked this dark road. Many walked it with us. It changed us and it changed them. This is part of our story. We cannot change that. We became those parents in 2003 when our daughter Laura, aged 7, was diagnosed with a neuroblastoma, a malignant soft tissue tumour, on her adrenal gland.

Yet one of the issues we facedon that journey was how individuals struggled to relate to us as a family and to Laura. This was our new reality. We had to cope. Others did not know how. And that is normal. Our default is avoidance. We are reluctant to look suffering in the face.